Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Work with me
  • Research opportunities
  • Contact me
  • IBD Science for Patients
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube

Tag: jpouch

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

16th Nov 202028th Apr 2023 Sahara Fleetwood-Beresford

What causes a J-pouch to fail?

23rd Oct 202021st Jun 2026 Sahara Fleetwood-Beresford

Going to a theme park with a stoma

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

29th Jan 202027th Mar 2023 Sahara Fleetwood-Beresford

Is it all in my head?

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

18th Jan 20193rd Feb 2026 Sahara Fleetwood-Beresford

My journey to stoma acceptance – 11 years, 7 surgeries and 3 ostomies later

22nd Aug 201827th Mar 2023 Sahara Fleetwood-Beresford

Upcoming Jpouch excision

25th Jul 201815th Jun 2023 Sahara Fleetwood-Beresford

Hydration with IBD, an ostomy or a Jpouch

26th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

This is a VERY long road I'm travelling

24th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Things people don't usually talk about – highs and lows of upcoming surgery

Posts navigation

Older Posts
Newer posts

First, apologies for the recent irresponsible post! Intestinal blockage aftermath... I’ve switched to an anti-inflammatory Mediterranean diet recently, but adapting it to suit my specific restrictions (intestinal strictures from surgeries) has been a lot to get my head around! 😵‍💫 Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

Donate
Donate monthly
Donate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 53 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
Loading Comments...