Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: jpouch

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

16th Nov 202028th Apr 2023 Sahara Fleetwood-Beresford

What causes a J-pouch to fail?

23rd Oct 202021st Jun 2026 Sahara Fleetwood-Beresford

Going to a theme park with a stoma

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

29th Jan 202027th Mar 2023 Sahara Fleetwood-Beresford

Is it all in my head?

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

18th Jan 20193rd Feb 2026 Sahara Fleetwood-Beresford

My journey to stoma acceptance – 11 years, 7 surgeries and 3 ostomies later

22nd Aug 201827th Mar 2023 Sahara Fleetwood-Beresford

Upcoming Jpouch excision

25th Jul 201815th Jun 2023 Sahara Fleetwood-Beresford

Hydration with IBD, an ostomy or a Jpouch

26th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

This is a VERY long road I'm travelling

24th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Things people don't usually talk about – highs and lows of upcoming surgery

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First frost ❄️ The reality of #ChronicIllness and #ChronicFatigue 🤗 Things people with chronic conditions say vs what we actually mean! Getting diagnosed with #ChronicPain feels like stepping into a room where no one speaks your language.💬 Being this resilient human, pushing through pain, flares, surgery and trauma was never a choice. Endurance was a necessary part of the path I was on. I couldn't turn back, plot a new course, or change where I was going. But I also couldn't give up. I was watching Star Trek: Strange New Worlds recently when I related to a quote so much from Dr. M'Benga, that I stopped to write it down: How do you figure out which foods your body tolerates, and which ones are a bad idea? 🫒 Another swap on the mission to reduce #microplastics! There's a charity bag collection tomorrow morning, so what better time to start going through what's in my spare room storage boxes? Sometimes it really is the small things in life. Today I am super happy because I have been productive at home and at work. My mum let me know that the Celebroty Pottery Throw Down series has finished, so that's ready for me to binge. I've got a delicious meal almost ready for me to eat and appreciate, plus a gorgeous dessert. And my latch hook kit arrived just in time for me to start watching The Celebrity Pottery Throw Down. It really does just feel like I'm in a flow state and everything is coming up roses 🌹 Your lived experience with #IBD matters, and healthcare researchers need to hear it! If you live with a #ChronicIllness and you see this post, please can you drop the condition(s) you live with in the comments. I am interested to see who I am reaching!
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