Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

Female in meditation
23rd Feb 2026 Sahara Fleetwood-Beresford

Why we need to talk about the mental impact of chronic illness

Stages of grief
20th Feb 202623rd Feb 2026 Sahara Fleetwood-Beresford

The stages of grief in chronic illness

9th Feb 202620th Feb 2026 Sahara Fleetwood-Beresford

Family planning, pregnancy & childbirth after bowel surgery

6th Feb 20266th Feb 2026 Sahara Fleetwood-Beresford

Overcoming fear: Speak your truth for better relationships

5th Feb 20264th Feb 2026 Sahara Fleetwood-Beresford

Braving the Big Talk – we don’t always need the “right” words

3rd Feb 20263rd Feb 2026 Sahara Fleetwood-Beresford

A different version of me: Why I stepped back and how I’m moving forward

28th Jan 202628th Jan 2026 Sahara Fleetwood-Beresford

Beyond suppression – copying nature’s IBD protection

15th Oct 202528th Jan 2026 Sahara Fleetwood-Beresford

Why vitamin D is important for people with IBD

4th Oct 202528th Jan 2026 Sahara Fleetwood-Beresford

World Ostomy Day: More than just survival

17th Aug 202526th Jan 2026 Sahara Fleetwood-Beresford

So, I became a meme: Advocacy and the risk of visibility

9th Jun 202526th Jan 2026 Sahara Fleetwood-Beresford

The recovery loop: Why it’s never a straight line

23rd Apr 202528th Jan 2026 Sahara Fleetwood-Beresford

More than surgery: When chronic illness becomes trauma

25th Feb 202528th Jan 2026 Sahara Fleetwood-Beresford

Some hard data on diet and Crohn’s: The ADDapt Trial

29th Jan 202530th Jan 2025 Sahara Fleetwood-Beresford

Holistic, complementary, and alternative medicine – what’s the difference?

20th Dec 202420th Oct 2025 Sahara Fleetwood-Beresford

Breathwork; scientifically backed breathing exercises to improve your health!

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Older Posts

Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing.
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Sahara Fleetwood-Beresford | Patient Advocacy
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