Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Research opportunity

6th Sep 20246th Sep 2024 Sahara Fleetwood-Beresford

Product testing opportunity | Ostomy leakage detection system

18th Jun 202418th Jun 2024 Sahara Fleetwood-Beresford

Research opportunity | Focus group for new stoma device

8th Mar 2024 Sahara Fleetwood-Beresford

Research opportunity | Digital Health & IBD

20th Oct 2023 Sahara Fleetwood-Beresford

Research opportunity | Budesonide in IBD online workshop

14th Jun 2023 Sahara Fleetwood-Beresford

Research opportunity | Mind-Body IBD Study

30th Mar 202330th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | Sex after permanent stoma surgery (survey)

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

11th Mar 20203rd Feb 2026 Sahara Fleetwood-Beresford

PoPSTER | Patient preferences & current Practice for adults with steroid resistant UC

5th Mar 202030th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | resilience in IBD study

I’ve spent the last few weeks completely overhauling my home to clear out microplastics. I wrote about how reducing microplastics can benefit people with #IBD and other #ChronicIllness 🔗 https://advocatinghealth.com/2026/09/08/reducing-microplastics-to-benefit-ibd/ First, apologies for the recent irresponsible post! Intestinal blockage aftermath... I’ve switched to an anti-inflammatory Mediterranean diet recently, but adapting it to suit my specific restrictions (intestinal strictures from surgeries) has been a lot to get my head around! 😵‍💫 Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜
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