Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: jpouch

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

11th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Night-time incontinence

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

9th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

How my own actions have negatively impacted my health

6th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Comments and accusations during meals out

17th Aug 202127th Mar 2023 Sahara Fleetwood-Beresford

Series wrap-Up | How my ulcerative colitis impacted my life

21st Jul 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD and sex

26th Jun 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How ulcerative colitis impacted my romantic relationships

11th May 202127th Mar 2023 Sahara Fleetwood-Beresford

How IBD has impacted my teeth

22nd Apr 202128th Jan 2026 Sahara Fleetwood-Beresford

To eat, or not to eat? That is the question.

26th Mar 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my physical activity

1st Mar 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my mental health

22nd Feb 202127th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Tips for covering odour and noise in toilets

15th Feb 202122nd Aug 2024 Sahara Fleetwood-Beresford

Why I wish I’d had my permanent stoma sooner

8th Jan 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my recreational activities

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First, apologies for the recent irresponsible post! Intestinal blockage aftermath... I’ve switched to an anti-inflammatory Mediterranean diet recently, but adapting it to suit my specific restrictions (intestinal strictures from surgeries) has been a lot to get my head around! 😵‍💫 Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/
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