Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: jpouch

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

16th Nov 202028th Apr 2023 Sahara Fleetwood-Beresford

What causes a J-pouch to fail?

23rd Oct 20203rd Apr 2024 Sahara Fleetwood-Beresford

Theme parks with a stoma

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

29th Jan 202027th Mar 2023 Sahara Fleetwood-Beresford

Is it all in my head?

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

18th Jan 20193rd Feb 2026 Sahara Fleetwood-Beresford

My journey to stoma acceptance – 11 years, 7 surgeries and 3 ostomies later

22nd Aug 201827th Mar 2023 Sahara Fleetwood-Beresford

Upcoming Jpouch excision

25th Jul 201815th Jun 2023 Sahara Fleetwood-Beresford

Hydration with IBD, an ostomy or a Jpouch

26th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

This is a VERY long road I'm travelling

24th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Things people don't usually talk about – highs and lows of upcoming surgery

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If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists. A memory popped into my head yesterday, that made me feel really icky.
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