Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

4th Nov 20232nd Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Gynaecology appointment and plan

3rd Nov 20232nd Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Hormones, swabs, and semen

2nd Nov 20238th Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Fear of the unknown after IBD surgeries

30th Oct 20236th Nov 2024 Sahara Fleetwood-Beresford

How stress affects IBD: The gut-brain connection

20th Oct 2023 Sahara Fleetwood-Beresford

Research opportunity | Budesonide in IBD online workshop

18th Jul 202318th Jul 2023 Sahara Fleetwood-Beresford

Taking pills doesn’t make me weak

15th Jun 2023 Sahara Fleetwood-Beresford

What’s a RADAR key and where to get one

14th Jun 2023 Sahara Fleetwood-Beresford

Research opportunity | Mind-Body IBD Study

1st Jun 2023 Sahara Fleetwood-Beresford

The tightrope of hope

14th Apr 2023 Sahara Fleetwood-Beresford

Using support groups correctly

27th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

Extraintestinal manifestations of IBD

17th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

How to get copies of your medical records (UK)

3rd Mar 202328th Jan 2026 Sahara Fleetwood-Beresford

What I can eat with a stoma: my experience post-surgery and beyond

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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