Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

14th Jun 2023 Sahara Fleetwood-Beresford

Research opportunity | Mind-Body IBD Study

1st Jun 2023 Sahara Fleetwood-Beresford

The tightrope of hope

14th Apr 2023 Sahara Fleetwood-Beresford

Using support groups correctly

27th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

Extraintestinal manifestations of IBD

17th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

How to get copies of your medical records (UK)

3rd Mar 202328th Jan 2026 Sahara Fleetwood-Beresford

What I can eat with a stoma: my experience post-surgery and beyond

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

20th Jan 202328th Jan 2026 Sahara Fleetwood-Beresford

Finding MY healthy lifestyle with IBD and an ostomy

19th Dec 202227th Mar 2023 Sahara Fleetwood-Beresford

Explaining IBD to family and friends

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

24th Nov 202217th Oct 2024 Sahara Fleetwood-Beresford

Products to support ostomates during day-to-day life

16th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Changing seasons, chronic fatigue, and mental health

5th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

An open letter to Matthew Perry regarding his stoma experience

20th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

My relationship with IBD and sleep

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I spent a recent Saturday undergoing a small bowel contrast Magnetic Resonance Enterography (MRE), and I wanted to share a quick reality check for anyone else living with #InflammatoryBowelDisease (IBD). These scans are a necessary part of our care, but they can be a lot to handle, both physically and mentally! I had my contrast MRE over a week ago, and I'm still suffering with intestinal cramps! 😫 On the 21st of April, I finally headed to the hospital for an appointment that has been over a year in the making. I was seen by a Registrar, so I immediately felt like I wasn’t being taken seriously. When I was taking a picture of Loki's nap position, my phone thought he was a flower 🌷 This is what 9 days of puppies and little time for anything else looks like 😅 Now they both have names 🙈 I'd like to officially welcome Loki (dapple) and Aragorn (choccy) to the pack 💕 Name chosen!! Thank you all for your suggestions 🙏🏻 I still couldn't decide, so I ended up using an online wheel of names. I still had a shortlist of 7 🙈 This little chipolata came home with us yesterday and still doesn't have a name!! In celebration of #NationalPetMonth, I wanted to share a story about the little heartbeats that have anchored me through some of my hardest years. That escalated quickly... 😳 (this should have posted yesterday!). Walking home from my second #LineDancing class ✨️ When you live with an #ostomy, there's often a kind of vulnerability in the simple act of getting dressed. For a long time, my bedroom mirror was a place of scrutiny rather than reflection. I would look at my #stoma and my scars, and see a list of things I had to hide, or a body that felt like it had betrayed me.
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