Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Research opportunities
  • Work with me
  • Contact me
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube

Tag: Stoma

3rd Oct 202024th May 2024 Sahara Fleetwood-Beresford

Why ostomy awareness is important to me

29th Sep 20205th Feb 2024 Sahara Fleetwood-Beresford

FAQ | Parastomal hernia prevention: Tips and insights

14th Sep 202023rd Nov 2023 Sahara Fleetwood-Beresford

How and why I got back into exercise after stoma surgery

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

30th Jul 20207th Sep 2023 Sahara Fleetwood-Beresford

Sustaining friendships has been more difficult due to chronic illness

14th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

How the lack of open public toilets impacts the ostomy community

7th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | A stoma can change shape and size!

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

23rd Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy leaks and samples!

4th May 202027th Mar 2023 Sahara Fleetwood-Beresford

How yoga has become a positive coping strategy

27th Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy Online | Loving yourself

19th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

Online Ostomy! What's going on in the online ostomy community?

4th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

KTMY | The Chronically Living Series: Sahara, Founder of #IBDSuperHeroes

22nd Jan 202028th Mar 2023 Sahara Fleetwood-Beresford

IBDRelief | Sahara Fleetwood-Beresford – My IBD Story

18th Dec 201928th Mar 2023 Sahara Fleetwood-Beresford

Fittleworth Medical introduce "Patient blogs" ~ by me

Posts navigation

Older Posts
Newer posts

Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

DonateDonate monthlyDonate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 52 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...