Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Ostomate

26th Jan 202327th Mar 2023 Sahara Fleetwood-Beresford

What to put in an emergency ostomy bag change kit

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

24th Nov 202217th Oct 2024 Sahara Fleetwood-Beresford

Products to support ostomates during day-to-day life

5th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

An open letter to Matthew Perry regarding his stoma experience

20th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

My relationship with IBD and sleep

18th Oct 202211th Mar 2025 Sahara Fleetwood-Beresford

Dealing with intestinal blockages

17th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

Physio update: Body and mind, misaligned

30th Sep 202228th Jan 2026 Sahara Fleetwood-Beresford

Common struggles after stoma surgery

8th Sep 202227th Mar 2023 Sahara Fleetwood-Beresford

Sleeping with an ostomy bag

5th Aug 202227th Mar 2023 Sahara Fleetwood-Beresford

Break-ups and fallouts post stoma surgery

1st Jul 202227th Mar 2023 Sahara Fleetwood-Beresford

Intimacy after stoma surgery

14th Jun 202227th Mar 2023 Sahara Fleetwood-Beresford

My experience of talking about my stoma to romantic partners

31st May 202227th Mar 2023 Sahara Fleetwood-Beresford

Talking to your partner about your stoma

18th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Naming your stoma

3rd May 202227th Mar 2023 Sahara Fleetwood-Beresford

Anxiety about using the toilet in other people’s homes

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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