Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

28th Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Trio Ostomy Care | Meet Sahara

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

17th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

Are you comfortable educating people about your health?

25th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Should I join an online support group?

5th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Contributing to improving care for IBD patients

18th May 201928th Mar 2023 Sahara Fleetwood-Beresford

IBD awareness hashtags for World IBD Day 2019

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

21st Feb 201927th Mar 2023 Sahara Fleetwood-Beresford

Why “How are you?” is difficult to answer when you’re sick so often

18th Jan 20193rd Feb 2026 Sahara Fleetwood-Beresford

My journey to stoma acceptance – 11 years, 7 surgeries and 3 ostomies later

14th Sep 201828th Mar 2023 Sahara Fleetwood-Beresford

The emotional impact of surgery

22nd Aug 201827th Mar 2023 Sahara Fleetwood-Beresford

Upcoming Jpouch excision

25th Jul 201815th Jun 2023 Sahara Fleetwood-Beresford

Hydration with IBD, an ostomy or a Jpouch

7th Jul 201824th Jun 2026 Sahara Fleetwood-Beresford

Ostomies and hot weather

26th Jun 201827th Mar 2023 Sahara Fleetwood-Beresford

Post-op ileus after bowel surgery

20th Jun 2018 Sahara Fleetwood-Beresford

Top 5 Crohn's Blogs 2018

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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