Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

18th Jan 20193rd Feb 2026 Sahara Fleetwood-Beresford

My journey to stoma acceptance – 11 years, 7 surgeries and 3 ostomies later

14th Sep 201828th Mar 2023 Sahara Fleetwood-Beresford

The emotional impact of surgery

22nd Aug 201827th Mar 2023 Sahara Fleetwood-Beresford

Upcoming Jpouch excision

25th Jul 201815th Jun 2023 Sahara Fleetwood-Beresford

Hydration with IBD, an ostomy or a Jpouch

7th Jul 201827th Mar 2023 Sahara Fleetwood-Beresford

Ostomies and hot weather

26th Jun 201827th Mar 2023 Sahara Fleetwood-Beresford

Post-op ileus after bowel surgery

20th Jun 2018 Sahara Fleetwood-Beresford

Top 5 Crohn's Blogs 2018

16th Jun 2018 Sahara Fleetwood-Beresford

Stoma gallery

2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

12th May 20183rd Feb 2026 Sahara Fleetwood-Beresford

Ulcerative Colitis is NOT always continuous and NOT always only in the colon

10th May 201824th Mar 2023 Sahara Fleetwood-Beresford

RELIABLE resources for Crohn's and Colitis research

2nd May 201824th Mar 2023 Sahara Fleetwood-Beresford

Self-care series | Looking after your mental health

26th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

This is a VERY long road I'm travelling

24th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Things people don't usually talk about – highs and lows of upcoming surgery

11th Apr 201828th Jan 2026 Sahara Fleetwood-Beresford

Self-care | Eating and Drinking with IBD

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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