Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

2nd Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

Frustrations of an Invisible Illness

1st Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

7 blogs for 7 days – Crohn’s & Colitis Awareness Week

25th Nov 201928th Mar 2023 Sahara Fleetwood-Beresford

“At least it’s not cancer”

20th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Balancing work, IBD and an ostomy

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

25th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

The extra-intestinal manifestations of ulcerative colitis

7th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

Responding to negativity in the IBD community

28th Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Trio Ostomy Care | Meet Sahara

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

17th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

Are you comfortable educating people about your health?

25th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Should I join an online support group?

5th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Contributing to improving care for IBD patients

18th May 201928th Mar 2023 Sahara Fleetwood-Beresford

IBD awareness hashtags for World IBD Day 2019

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

21st Feb 201927th Mar 2023 Sahara Fleetwood-Beresford

Why “How are you?” is difficult to answer when you’re sick so often

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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