Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

15th Feb 202122nd Aug 2024 Sahara Fleetwood-Beresford

Why I wish I’d had my permanent stoma sooner

29th Jan 202128th Jan 2026 Sahara Fleetwood-Beresford

Why did I eat that?!

20th Jan 20213rd Aug 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my family planning

10th Jan 202119th Jun 2024 Sahara Fleetwood-Beresford

Fitness pre and post-abdominal surgery

8th Jan 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my recreational activities

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

3rd Dec 202027th Mar 2023 Sahara Fleetwood-Beresford

What’s going on in Inflammatory Bowel Disease research?

25th Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my career

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

17th Nov 202010th Apr 2024 Sahara Fleetwood-Beresford

How do you empty your ostomy bag?

16th Nov 202028th Apr 2023 Sahara Fleetwood-Beresford

What causes a J-pouch to fail?

3rd Nov 20203rd Apr 2024 Sahara Fleetwood-Beresford

I don’t always like my stoma

28th Sep 202027th Mar 2023 Sahara Fleetwood-Beresford

The unpredictability of Inflammatory Bowel Disease

14th Sep 202023rd Nov 2023 Sahara Fleetwood-Beresford

How and why I got back into exercise after stoma surgery

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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