Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

24th Aug 202027th Mar 2023 Sahara Fleetwood-Beresford

How much control do we have over our triggers?

31st Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

Waiting: A Symptom of IBD?

30th Jul 20207th Sep 2023 Sahara Fleetwood-Beresford

Sustaining friendships has been more difficult due to chronic illness

14th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

How the lack of open public toilets impacts the ostomy community

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

25th Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

Burnout in people with IBD

8th Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

My experience of chronic fatigue

29th May 202028th Mar 2023 Sahara Fleetwood-Beresford

Am I causing my own symptoms?

19th May 202027th Mar 2023 Sahara Fleetwood-Beresford

#IBDSuperHeroes World IBD Day Challenge

6th May 202028th Mar 2023 Sahara Fleetwood-Beresford

Expectations after diagnosis

4th May 202027th Mar 2023 Sahara Fleetwood-Beresford

How yoga has become a positive coping strategy

27th Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy Online | Loving yourself

22nd Apr 202028th Mar 2023 Sahara Fleetwood-Beresford

Stress? Anxiety? Panic? Whatever it's called, I don't like it!

21st Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

How COVID-19 has impacted the IBD community

14th Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

When GPs get it wrong

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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