Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

26th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD diagnostics and examinations can be really disruptive

20th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Disability Employment Awareness Month

14th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Invisible illness. Just because I look OK…

9th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

How my own actions have negatively impacted my health

6th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Comments and accusations during meals out

25th Sep 202127th Mar 2023 Sahara Fleetwood-Beresford

What if I don’t want to rest?!

21st Sep 202127th Mar 2023 Sahara Fleetwood-Beresford

Where’s my psychological support?

17th Sep 202127th Mar 2023 Sahara Fleetwood-Beresford

What I wish people understood about life with IBD

4th Sep 202128th Jan 2026 Sahara Fleetwood-Beresford

We’re not “fussy eaters"!

3rd Sep 202121st Jun 2026 Sahara Fleetwood-Beresford

FAQ | Preparing For Stoma Surgery – Part 2

21st Aug 202127th Mar 2023 Sahara Fleetwood-Beresford

How I was yesterday means nothing today!

17th Aug 202127th Mar 2023 Sahara Fleetwood-Beresford

Series wrap-Up | How my ulcerative colitis impacted my life

22nd Jul 202127th Mar 2023 Sahara Fleetwood-Beresford

Trying to find balance with IBD pain

21st Jul 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD and sex

13th Jul 202127th Mar 2023 Sahara Fleetwood-Beresford

Hollister | Sharing their voices to inspire and encourage others

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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