Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

3rd Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

The life's too short concept comes easily when you've nearly lost it

2nd Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

There's no dignity in IBD

1st Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

My Ulcerative Colitis diagnosis

10th Oct 2015 Sahara Fleetwood-Beresford

ITV | Pride of Britain East Midlands Nominees – Sahara Fleetwood-Beresford

27th Sep 20153rd Feb 2026 Sahara Fleetwood-Beresford

Pride of Britain: Meet the finalists competing to be crowned ITV Fundraiser of the Year

5th Sep 201524th Mar 2023 Sahara Fleetwood-Beresford

When the walls close in

14th Jul 201524th Mar 2023 Sahara Fleetwood-Beresford

The frustrations that come with chronic illness

17th May 20153rd Feb 2026 Sahara Fleetwood-Beresford

Has your outlook on life /priorities changed since being diagnosed with IBD?

16th May 20153rd Feb 2026 Sahara Fleetwood-Beresford

Has IBD made it difficult in terms of dating or sustaining your relationship?

15th May 20153rd Feb 2026 Sahara Fleetwood-Beresford

Do you feel you get enough support from your healthcare team?

14th May 201524th Mar 2023 Sahara Fleetwood-Beresford

Has IBD affected your relationship with friends and family?

19th Apr 201524th Mar 2023 Sahara Fleetwood-Beresford

Poem | A battle called ibd

2nd Apr 201524th Mar 2023 Sahara Fleetwood-Beresford

Always keep going

18th Mar 201524th Mar 2023 Sahara Fleetwood-Beresford

So I just keep going, the scenery never changing.

4th Feb 201524th Mar 2023 Sahara Fleetwood-Beresford

My IBD diagnosis saved me from myself

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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