Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s Disease

31st May 201724th Mar 2023 Sahara Fleetwood-Beresford

Join me on The IBD & Ostomy Show, Thursday 8th of June

15th May 201724th Mar 2023 Sahara Fleetwood-Beresford

The Mighty | Why We're Raising Awareness on World IBD Day

21st Apr 201724th Mar 2023 Sahara Fleetwood-Beresford

Do you really know where your charitable donations go? A few figures

15th Mar 20173rd Feb 2026 Sahara Fleetwood-Beresford

Managing IBD | A balanced guide to Inflammatory Bowel Disease book review

18th Jan 201728th Jan 2026 Sahara Fleetwood-Beresford

Foods to combat fatigue | Desperate times – desperate measures

16th Jan 201724th Mar 2023 Sahara Fleetwood-Beresford

Dear Aloe Vera rep | open letter to those targeting Crohn's & Colitis sufferers

15th Dec 201624th Mar 2023 Sahara Fleetwood-Beresford

Unfounded guilt in chronic illness

3rd Jun 20167th Sep 2023 Sahara Fleetwood-Beresford

The “what if” mindset is common in IBD

1st Jun 201613th Mar 2024 Sahara Fleetwood-Beresford

Life in remission with Inflammatory Bowel Disease (IBD)

24th Apr 201624th Mar 2023 Sahara Fleetwood-Beresford

Openly insulting statements about ostomies online

5th Mar 201624th Mar 2023 Sahara Fleetwood-Beresford

Raising money for #IBDSuperHeroes with aerial assault course

9th Jan 201624th Mar 2023 Sahara Fleetwood-Beresford

The time has come, to bid #GetYourBellyOut farewell

6th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

Special thanks to my mum for the support

5th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

Fatigue is my biggest issue

4th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

There really isn't a cure…

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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