Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Research opportunities
  • Work with me
  • Contact me
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube
2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

18th Jan 201728th Jan 2026 Sahara Fleetwood-Beresford

Foods to combat fatigue | Desperate times – desperate measures

16th Jan 201724th Mar 2023 Sahara Fleetwood-Beresford

Dear Aloe Vera rep | open letter to those targeting Crohn's & Colitis sufferers

15th Dec 201624th Mar 2023 Sahara Fleetwood-Beresford

Unfounded guilt in chronic illness

11th Aug 201624th Mar 2023 Sahara Fleetwood-Beresford

Dear inappropriate lady with your colostomy bag at the pool today… WOW

2nd Aug 201624th Mar 2023 Sahara Fleetwood-Beresford

Yes I have IBD, but Ynot go to a festival?

3rd Jun 20167th Sep 2023 Sahara Fleetwood-Beresford

The “what if” mindset is common in IBD

1st Jun 201613th Mar 2024 Sahara Fleetwood-Beresford

Life in remission with Inflammatory Bowel Disease (IBD)

24th Apr 201624th Mar 2023 Sahara Fleetwood-Beresford

Openly insulting statements about ostomies online

5th Mar 201624th Mar 2023 Sahara Fleetwood-Beresford

Raising money for #IBDSuperHeroes with aerial assault course

9th Jan 201624th Mar 2023 Sahara Fleetwood-Beresford

The time has come, to bid #GetYourBellyOut farewell

6th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

Special thanks to my mum for the support

5th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

Fatigue is my biggest issue

4th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

There really isn't a cure…

3rd Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

The life's too short concept comes easily when you've nearly lost it

2nd Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

There's no dignity in IBD

Posts navigation

Older Posts
Newer posts

SOME surgeries can impact fertility, but finding the facts and figures for your specific surgery can be difficult 🤯 It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words.
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

DonateDonate monthlyDonate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 52 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...