Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Work with me
  • Research opportunities
  • Contact me
  • IBD Science for Patients
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube
2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

12th May 20183rd Feb 2026 Sahara Fleetwood-Beresford

Ulcerative Colitis is NOT always continuous and NOT always only in the colon

10th May 201824th Mar 2023 Sahara Fleetwood-Beresford

RELIABLE resources for Crohn's and Colitis research

2nd May 201824th Mar 2023 Sahara Fleetwood-Beresford

Self-care series | Looking after your mental health

1st May 201824th Mar 2023 Sahara Fleetwood-Beresford

Best IBD awareness hashtags to use!

26th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

This is a VERY long road I'm travelling

24th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Things people don't usually talk about – highs and lows of upcoming surgery

11th Apr 201828th Jan 2026 Sahara Fleetwood-Beresford

Self-care | Eating and Drinking with IBD

3rd Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Keep building the warriors we look up to…

29th Mar 20183rd Feb 2026 Sahara Fleetwood-Beresford

Metro | ‘It’s a constant battle and a daily struggle’: 10 IBD patients share their Dynamo-inspired selfies

19th Mar 201824th Mar 2023 Sahara Fleetwood-Beresford

Why you SHOULD love the skin you're in

16th Mar 201824th Mar 2023 Sahara Fleetwood-Beresford

Self-care series | What your body needs

23rd Feb 201824th Mar 2023 Sahara Fleetwood-Beresford

My mum on BBC Radio Derby, talking me, IBD and raising some awareness

22nd Feb 201824th Mar 2023 Sahara Fleetwood-Beresford

Self-care series | Tracking your symptoms

31st Jan 201824th Mar 2023 Sahara Fleetwood-Beresford

Self-care series | Know your body and when to contact your IBD team

3rd Jan 201824th Mar 2023 Sahara Fleetwood-Beresford

Self-care series | Communicating with your healthcare team

Posts navigation

Older Posts
Newer posts

It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration! I wanted to share a little update following yesterdays post about trying to reduce some of my pain medication, and that this week has been worst than last, despite the dose being the same. ​I am trying to reduce some of my pain medication at the moment. Today is the birthday of the NHS! As someone who has survived seven abdominal surgeries, sepsis, C-diff, and years of managing #UlcerativeColitis and #fibromyalgia, my relationship with healthcare is deep, complex, and incredibly personal. Looking in the mirror when you live with a #ChronicIllness like #IBD or fibro can be a really complicated experience! For a long time, when I looked at my reflection, all I could see were the visible reminders of what my body had been through: the scars, medication side effects, and #ostomy bag. It’s so easy to focus entirely on the parts that feel altered, scarred, or broken. I've started a new little project, and I'm excited to share it with you! It is called IBD Science for Patients. July is #DisabilityPrideMonth, and it got me thinking about how we define that word. For a long time, I didn't think it applied to me, even while managing #InflammatoryBowelDisease and living with an #ostomy bag. When your illness is mostly hidden behind closed doors, it is so easy to downplay your own reality! Ever since I became active in the online #IBD community back in 2014, I’ve regularly struggled with seeing people I care about going through sh*t, and feeling like there was absolutely nothing I could do or say to fix it.
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

Donate
Donate monthly
Donate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 54 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
Loading Comments...