Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

2nd Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

Frustrations of an Invisible Illness

1st Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

7 blogs for 7 days – Crohn’s & Colitis Awareness Week

25th Nov 201928th Mar 2023 Sahara Fleetwood-Beresford

“At least it’s not cancer”

20th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Balancing work, IBD and an ostomy

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

2nd Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Celebrating my achievements since stoma surgery!

25th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

The extra-intestinal manifestations of ulcerative colitis

7th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

Responding to negativity in the IBD community

28th Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Trio Ostomy Care | Meet Sahara

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

2nd Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Tut Tut, Butlin's!

30th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

My stoma favourites – Adhesive remover & barrier wipes

25th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

It’s official – I’m a writer now!

17th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

Are you comfortable educating people about your health?

25th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Should I join an online support group?

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SOME surgeries can impact fertility, but finding the facts and figures for your specific surgery can be difficult 🤯 It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words.
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Sahara Fleetwood-Beresford | Patient Advocacy
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