Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

31st Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

Waiting: A Symptom of IBD?

30th Jul 20207th Sep 2023 Sahara Fleetwood-Beresford

Sustaining friendships has been more difficult due to chronic illness

14th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

How the lack of open public toilets impacts the ostomy community

7th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | A stoma can change shape and size!

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

25th Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

Burnout in people with IBD

23rd Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy leaks and samples!

8th Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

My experience of chronic fatigue

29th May 202028th Mar 2023 Sahara Fleetwood-Beresford

Am I causing my own symptoms?

19th May 202027th Mar 2023 Sahara Fleetwood-Beresford

#IBDSuperHeroes World IBD Day Challenge

6th May 202028th Mar 2023 Sahara Fleetwood-Beresford

Expectations after diagnosis

4th May 202027th Mar 2023 Sahara Fleetwood-Beresford

How yoga has become a positive coping strategy

27th Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy Online | Loving yourself

22nd Apr 202028th Mar 2023 Sahara Fleetwood-Beresford

Stress? Anxiety? Panic? Whatever it's called, I don't like it!

21st Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

How COVID-19 has impacted the IBD community

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It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need.
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Sahara Fleetwood-Beresford | Patient Advocacy
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