Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Author: Sahara Fleetwood-Beresford

16th Jan 201724th Mar 2023 Sahara Fleetwood-Beresford

Dear Aloe Vera rep | open letter to those targeting Crohn's & Colitis sufferers

15th Dec 201624th Mar 2023 Sahara Fleetwood-Beresford

Unfounded guilt in chronic illness

11th Aug 201624th Mar 2023 Sahara Fleetwood-Beresford

Dear inappropriate lady with your colostomy bag at the pool today… WOW

2nd Aug 201624th Mar 2023 Sahara Fleetwood-Beresford

Yes I have IBD, but Ynot go to a festival?

3rd Jun 20167th Sep 2023 Sahara Fleetwood-Beresford

The “what if” mindset is common in IBD

1st Jun 201613th Mar 2024 Sahara Fleetwood-Beresford

Life in remission with Inflammatory Bowel Disease (IBD)

24th Apr 201624th Mar 2023 Sahara Fleetwood-Beresford

Openly insulting statements about ostomies online

5th Mar 201624th Mar 2023 Sahara Fleetwood-Beresford

Raising money for #IBDSuperHeroes with aerial assault course

9th Jan 201624th Mar 2023 Sahara Fleetwood-Beresford

The time has come, to bid #GetYourBellyOut farewell

6th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

Special thanks to my mum for the support

5th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

Fatigue is my biggest issue

4th Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

There really isn't a cure…

3rd Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

The life's too short concept comes easily when you've nearly lost it

2nd Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

There's no dignity in IBD

1st Dec 201524th Mar 2023 Sahara Fleetwood-Beresford

My Ulcerative Colitis diagnosis

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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