The tightrope of hope

Do you ever feel like you’re losing hope? Research says people with long-term health conditions are more likely to suffer from mental health problems. I don’t know why we need research to tell us that. As someone that’s had chronic health issues since 2007, I can confidently say… Well, duh! How can someone constantly dealing with barriers, pain, false starts etc. not feel down and overwhelmed by it, sometimes?

I’m not an optimist

I wouldn’t go as far as to say I’m eternally optimistic. I feel that optimism insinuates an expectation of a positive outcome. I don’t expect a positive outcome, but I do always hope for one. I consider myself to be eternally hopeful.

Don’t get me wrong, sometimes, it feels like I’m desperately clinging onto hope, for I fear that if I let it go, even for a moment, I’ll fall into despair.

I choose hope

Truth be told, I’m fundamentally a realist. I see the reality and I acknowledge it. For me, hope is a choice. Hope is essential. I always choose hope, regardless of whether the realist in me knows that the outcome might not be what I’m actually hoping for…

At times, being eternally hopeful can feel like a real balancing act. I don’t want to be so hopeful that I fool myself into expecting the unrealistic. I don’t want to be so hopeful that I feel incredibly disappointed if the outcome is not what I’d hoped for. But, holding onto hope and being positive matters to me.

Without hope, I don’t think I’d have been able to keep going through all of the pain and illness. I’ve been hopeful as I’ve gone through diagnostic processes, tried new medications, and had surgery after surgery. Of course, that means I’ve also experienced disappointment when the results aren’t what I hoped for, the medication didn’t help, and the surgery didn’t make much difference. However, I’ve experienced letting that hope slip away because I’m tired and I feel like I’ve had enough of it all, and that place was dark. That’s a place I never want to visit again. I’ll take disappointment over hopelessness any day!

Even now, as every day is a day I experience a lot of pain, I still go to bed every night hopeful that tomorrow will be better. What else can I do?!

4 comments

  1. Theirs always hope, I gave up in hospital but their was always something that made me fight to live,
    All that effort and dedication, the love put in by the doctors and nurses to help me live how could I let them down🤷‍♀️.
    Then at my lowest out side my shower with a leaking stoma bag in the cold struggling weather to just walk infront of a bus or fight it and win there was hope.
    Then I read all your back log of blogs, wow.
    What you been through, all the traumas, pain, despair at a young age with your whole life ahead of you but you did it…. You came out the other end.
    Could I have at your age? One thinks not.
    At my lowest your blogs gave me the will to fight and win…. Thank you.
    You gave me hope recently, every bad day I think ‘ well that young lady did it so can you Barry .
    When theirs hero’s like you Sahara than theirs hope for people like me…….
    Thank you.
    Be strong , we are all routing for you…..
    My young HERO……

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  2. My lady I bow for forgiveness for it’s not for me to make a lady cry…..
    Let us be your balance as you walk your tightrope of life and hope….
    The pain you speak off hopefully in the long run become fruits of pure happiness and good health,
    For an angel on earth deserves nothing less.
    You are not alone, we share the pain with you and are with you…. Always.
    Be strong angel.
    And thank you again for all your help to us all
    You not know it but your blogs are eminence .
    Like you

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