Travelling can be challenging enough, but when you add a stoma into the mix, it can feel even more daunting! But don’t worry, with a bit of planning, you can enjoy your trip just as much as anyone else!

Packing and planning

If you’re a fan of lists like I am, planning your packing can actually be quite therapeutic! I usually divide my list into categories: clothes, toiletries, tech, and those little extras like plasters and safety pins. But with a stoma and a chronic illness, I’ve got a few additional lists – medications and stoma supplies. One thing I never forget to pack is plenty of rehydration mix sachets. Whether it’s sunbathing, drinking alcohol, or just being active, dehydration is always a risk, and it’s better to be prepared.

Always pack more supplies than you think you’ll need. It’s much better to have extras than to run out! Some people like to split stoma supplies between their checked luggage and their carry-on, just in case their bags get lost. You can also speak to the airline about taking them on board with you, so you don’t risk them getting lost. Don’t forget to pre-cut your bags if you need to, and leave the scissors out of your carry-on for obvious reasons!

If you’re planning to swim or catch some sun and are unsure about what to wear, the answer is simple: whatever makes you feel comfortable! High-waisted bikinis are in style right now, and patterns or frills can help conceal your bag if that’s something you’re concerned about. Bag covers, sarongs, or just going without any extra cover-up are all great options. Trust me, most people are too focused on themselves to even notice your stoma bag!

If you’re flying, it’s a good idea to request an aisle seat near the toilets. Some airlines will even allow you to bring extra baggage for medical supplies, so it’s worth checking in advance!

The journey

When it comes to the journey itself, I like to plan what and when I eat so that my stoma isn’t too active. The last thing I do before leaving the house is empty my bag and bladder.

If we’re traveling by car, I always like to know the route and where the service stations are, just in case I need a restroom break. Google Maps is perfect for this!

During our last flight, airport security actually noticed my ostomy bag on the scanner. I was a bit surprised, but it wasn’t a big deal. A lady simply ran her hands around my waistband and sent me on my way. She honestly looked more embarrassed than I felt! However, I know this might be uncomfortable for some. If that’s the case, many ostomy manufacturers and distribution companies provide an ostomy travel certificate that explains, in multiple languages, what your ostomy supplies are for and why you’re carrying them. This can help avoid awkward questions at customs, and ensure that any examination is done privately.

You can also get a sunflower lanyard if needed. This discreet symbol lets staff know that you have an invisible condition and might need extra help or time. These lanyards can be picked up at airport assistance desks or ordered online.

And just before boarding the plane, I always make a final trip to the restroom to make sure everything’s empty.

When you arrive

After arriving at your destination, you might face new challenges, like finding the best way to dispose of your stoma supplies. For example, when I went to Tenby after recovering from my last stoma surgery, I wasn’t sure where to dispose of my used bags. After asking around online, I learned that the general consensus is to use the small bin in the bathroom. The cleaner typically empties it daily, but if they don’t, you can always ask them to.

Remember to store your stoma supplies somewhere cool and dry—heat can affect the adhesive. And if you’re planning on being more active than usual, keep in mind that you might need extra supplies. Activities that make you sweat more can impact the adhesion of your baseplate, and even just lying on the beach can have the same effect if you’re sweating. Make sure your skin is completely dry before applying a new baseplate—a hairdryer on a cool setting can be handy for this! And always apply sunscreen after attaching your bag.

Hydration is another crucial factor, especially in warmer weather or when you’re more active. I always bring rehydration sachets because I need to replace my electrolytes to stay properly hydrated. Everyone’s needs are different, so it’s worth discussing this with your stoma nurse. Bottled water is usually the safest option when traveling, and you should be mindful of it even when brushing your teeth or ordering drinks with ice. I once made the rookie mistake of thinking I could safely drink the tap water in Ireland—it didn’t end well for my stomach!

Enjoying your trip

For me, preparation is key to feeling safe. I always have my spare supplies with me and usually scout for toilets before heading anywhere—there are plenty of apps for that!

The most important thing is to enjoy yourself. Don’t push yourself too hard or feel pressured to do anything you’re not comfortable with. Sometimes, being on holiday gives us a bit of extra courage because we’re in a place where no one knows us. Maybe that means you’ll feel confident enough to show your bag on the beach or try an activity you wouldn’t normally do. If so, that’s fantastic! But if not, that’s perfectly fine too. Just do what feels right for you!