Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Urostomy

9th Feb 20269th Feb 2026 Sahara Fleetwood-Beresford

Family planning, pregnancy & childbirth after bowel surgery: real experiences, real emotions

17th Aug 202526th Jan 2026 Sahara Fleetwood-Beresford

So, I became a meme: Advocacy and the risk of visibility

17th Oct 202428th Jan 2026 Sahara Fleetwood-Beresford

Swimwear for women with an ostomy

6th Sep 20246th Sep 2024 Sahara Fleetwood-Beresford

Product testing opportunity | Ostomy leakage detection system

18th Jun 202418th Jun 2024 Sahara Fleetwood-Beresford

Research opportunity | Focus group for new stoma device

4th Apr 202328th Jan 2026 Sahara Fleetwood-Beresford

What topics should stoma nurses be prompting conversations about?

30th Mar 202330th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | Sex after permanent stoma surgery (survey)

When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users! Have you ever wondered why some people never develop #IBD even when it’s in their family? 🧬✨ 📣 I need help from users of #MenstrualCups 🙏🏻 My cousin suggested a taxi to an area in #Reykjavik with waterfalls and woods for the 14th. Surprisingly, everyone was up for it, despite the fact we were all completely exhausted 😂 I think it being our last day played part in us managing to rally! Me in Iceland:
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