Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Work with me
  • Research opportunities
  • Contact me
  • IBD Science for Patients
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube

Tag: Stoma

10th Nov 202310th Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Hydrosalpinges and hormone problems

9th Nov 20233rd Feb 2026 Sahara Fleetwood-Beresford

Fertility testing journey | HSG X-ray (Hysterosalpingogram)

7th Nov 20236th Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Cervical dilation procedure

6th Nov 20236th Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Abdomen, pelvis, and transvaginal ultrasound

3rd Nov 20232nd Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | Hormones, swabs, and semen

14th Apr 2023 Sahara Fleetwood-Beresford

Using support groups correctly

4th Apr 202328th Jan 2026 Sahara Fleetwood-Beresford

What topics should stoma nurses be prompting conversations about?

30th Mar 202330th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | Sex after permanent stoma surgery (survey)

3rd Mar 202328th Jan 2026 Sahara Fleetwood-Beresford

What I can eat with a stoma: my experience post-surgery and beyond

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

26th Jan 202327th Mar 2023 Sahara Fleetwood-Beresford

What to put in an emergency ostomy bag change kit

20th Jan 202328th Jan 2026 Sahara Fleetwood-Beresford

Finding MY healthy lifestyle with IBD and an ostomy

24th Nov 202217th Oct 2024 Sahara Fleetwood-Beresford

Products to support ostomates during day-to-day life

5th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

An open letter to Matthew Perry regarding his stoma experience

18th Oct 202211th Mar 2025 Sahara Fleetwood-Beresford

Dealing with intestinal blockages

Posts navigation

Older Posts
Newer posts

When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration!
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

Donate
Donate monthly
Donate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 54 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
Loading Comments...