Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Social Media

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

4th Mar 202228th Mar 2023 Sahara Fleetwood-Beresford

Your relationship with yourself: Processing your emotions & body confidence tips

4th Dec 202127th Mar 2023 Sahara Fleetwood-Beresford

What is crohn’s and colitis advocacy?

13th Jul 202127th Mar 2023 Sahara Fleetwood-Beresford

Hollister | Sharing their voices to inspire and encourage others

6th May 202127th Mar 2023 Sahara Fleetwood-Beresford

Why I celebrate World IBD Day every year

1st Mar 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my mental health

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

17th Nov 202010th Apr 2024 Sahara Fleetwood-Beresford

How do you empty your ostomy bag?

30th Jul 20207th Sep 2023 Sahara Fleetwood-Beresford

Sustaining friendships has been more difficult due to chronic illness

14th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

How the lack of open public toilets impacts the ostomy community

21st Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

How COVID-19 has impacted the IBD community

26th Mar 20203rd Feb 2026 Sahara Fleetwood-Beresford

TalkHealth | meets…Sahara Fleetwood-Beresford, IBD blogger & #IBDSuperHeroes founder

19th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

Online Ostomy! What's going on in the online ostomy community?

18th Dec 20191st Nov 2023 Sahara Fleetwood-Beresford

Feeling lonely is more normal than you think

2nd Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Celebrating my achievements since stoma surgery!

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Older Posts

When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration!
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