Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Research opportunity

6th Sep 20246th Sep 2024 Sahara Fleetwood-Beresford

Product testing opportunity | Ostomy leakage detection system

18th Jun 202418th Jun 2024 Sahara Fleetwood-Beresford

Research opportunity | Focus group for new stoma device

8th Mar 2024 Sahara Fleetwood-Beresford

Research opportunity | Digital Health & IBD

20th Oct 2023 Sahara Fleetwood-Beresford

Research opportunity | Budesonide in IBD online workshop

14th Jun 2023 Sahara Fleetwood-Beresford

Research opportunity | Mind-Body IBD Study

30th Mar 202330th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | Sex after permanent stoma surgery (survey)

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

11th Mar 20203rd Feb 2026 Sahara Fleetwood-Beresford

PoPSTER | Patient preferences & current Practice for adults with steroid resistant UC

5th Mar 202030th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | resilience in IBD study

If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists. A memory popped into my head yesterday, that made me feel really icky.
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