Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Work with me
  • Research opportunities
  • Contact me
  • IBD Science for Patients
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube

Tag: Ostomy life

8th Jan 202124th May 2024 Sahara Fleetwood-Beresford

FAQ | Bathing and showering with an ostomy

8th Jan 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my recreational activities

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

17th Nov 202010th Apr 2024 Sahara Fleetwood-Beresford

How do you empty your ostomy bag?

3rd Nov 20203rd Apr 2024 Sahara Fleetwood-Beresford

I don’t always like my stoma

23rd Oct 202021st Jun 2026 Sahara Fleetwood-Beresford

Going to a theme park with a stoma

3rd Oct 202024th May 2024 Sahara Fleetwood-Beresford

Why ostomy awareness is important to me

29th Sep 20205th Feb 2024 Sahara Fleetwood-Beresford

FAQ | Parastomal hernia prevention: Tips and insights

14th Sep 202023rd Nov 2023 Sahara Fleetwood-Beresford

How and why I got back into exercise after stoma surgery

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

7th Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | A stoma can change shape and size!

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

23rd Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy leaks and samples!

4th May 202027th Mar 2023 Sahara Fleetwood-Beresford

How yoga has become a positive coping strategy

27th Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy Online | Loving yourself

Posts navigation

Older Posts
Newer posts

It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration! I wanted to share a little update following yesterdays post about trying to reduce some of my pain medication, and that this week has been worst than last, despite the dose being the same. ​I am trying to reduce some of my pain medication at the moment. Today is the birthday of the NHS! As someone who has survived seven abdominal surgeries, sepsis, C-diff, and years of managing #UlcerativeColitis and #fibromyalgia, my relationship with healthcare is deep, complex, and incredibly personal. Looking in the mirror when you live with a #ChronicIllness like #IBD or fibro can be a really complicated experience! For a long time, when I looked at my reflection, all I could see were the visible reminders of what my body had been through: the scars, medication side effects, and #ostomy bag. It’s so easy to focus entirely on the parts that feel altered, scarred, or broken. I've started a new little project, and I'm excited to share it with you! It is called IBD Science for Patients. July is #DisabilityPrideMonth, and it got me thinking about how we define that word. For a long time, I didn't think it applied to me, even while managing #InflammatoryBowelDisease and living with an #ostomy bag. When your illness is mostly hidden behind closed doors, it is so easy to downplay your own reality! Ever since I became active in the online #IBD community back in 2014, I’ve regularly struggled with seeing people I care about going through sh*t, and feeling like there was absolutely nothing I could do or say to fix it.
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

Donate
Donate monthly
Donate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 54 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
Loading Comments...