Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Ostomy Awareness

20th Mar 2026 Sahara Fleetwood-Beresford

Can you lie on your front with a stoma?

Stages of grief
20th Feb 202627th Feb 2026 Sahara Fleetwood-Beresford

The stages of grief in chronic illness

9th Feb 202620th Feb 2026 Sahara Fleetwood-Beresford

Family planning, pregnancy & childbirth after bowel surgery

5th Feb 20264th Feb 2026 Sahara Fleetwood-Beresford

Braving the Big Talk – we don’t always need the “right” words

4th Oct 202528th Jan 2026 Sahara Fleetwood-Beresford

World Ostomy Day: More than just survival

17th Aug 202526th Jan 2026 Sahara Fleetwood-Beresford

So, I became a meme: Advocacy and the risk of visibility

9th Jun 202526th Jan 2026 Sahara Fleetwood-Beresford

The recovery loop: Why it’s never a straight line

17th Oct 202428th Jan 2026 Sahara Fleetwood-Beresford

Swimwear for women with an ostomy

6th Sep 20246th Sep 2024 Sahara Fleetwood-Beresford

Product testing opportunity | Ostomy leakage detection system

1st Feb 202428th Jan 2026 Sahara Fleetwood-Beresford

FAQ | Managing different ostomy output

4th Apr 202328th Jan 2026 Sahara Fleetwood-Beresford

What topics should stoma nurses be prompting conversations about?

3rd Mar 202328th Jan 2026 Sahara Fleetwood-Beresford

What I can eat with a stoma: my experience post-surgery and beyond

26th Jan 202327th Mar 2023 Sahara Fleetwood-Beresford

What to put in an emergency ostomy bag change kit

24th Nov 202217th Oct 2024 Sahara Fleetwood-Beresford

Products to support ostomates during day-to-day life

5th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

An open letter to Matthew Perry regarding his stoma experience

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Older Posts

If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists. A memory popped into my head yesterday, that made me feel really icky.
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