Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Ostomate

Stages of grief
20th Feb 2026 Sahara Fleetwood-Beresford

The stages of grief in chronic illness

9th Feb 202620th Feb 2026 Sahara Fleetwood-Beresford

Family planning, pregnancy & childbirth after bowel surgery

5th Feb 20264th Feb 2026 Sahara Fleetwood-Beresford

Braving the Big Talk – we don’t always need the “right” words

3rd Feb 20263rd Feb 2026 Sahara Fleetwood-Beresford

A different version of me: Why I stepped back and how I’m moving forward

4th Oct 202528th Jan 2026 Sahara Fleetwood-Beresford

World Ostomy Day: More than just survival

17th Aug 202526th Jan 2026 Sahara Fleetwood-Beresford

So, I became a meme: Advocacy and the risk of visibility

9th Jun 202526th Jan 2026 Sahara Fleetwood-Beresford

The recovery loop: Why it’s never a straight line

17th Oct 202428th Jan 2026 Sahara Fleetwood-Beresford

Swimwear for women with an ostomy

6th Sep 20246th Sep 2024 Sahara Fleetwood-Beresford

Product testing opportunity | Ostomy leakage detection system

18th Jun 202418th Jun 2024 Sahara Fleetwood-Beresford

Research opportunity | Focus group for new stoma device

20th Mar 202428th Jan 2026 Sahara Fleetwood-Beresford

Bowel obstruction experience and fears

1st Feb 202428th Jan 2026 Sahara Fleetwood-Beresford

FAQ | Managing different ostomy output

4th Apr 202328th Jan 2026 Sahara Fleetwood-Beresford

What topics should stoma nurses be prompting conversations about?

30th Mar 202330th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | Sex after permanent stoma surgery (survey)

3rd Mar 202328th Jan 2026 Sahara Fleetwood-Beresford

What I can eat with a stoma: my experience post-surgery and beyond

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Older Posts

Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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Sahara Fleetwood-Beresford | Patient Advocacy
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