Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Inflammatory Bowel Disease

19th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

Ostomy life: Progress report

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

9th Dec 202128th Mar 2023 Sahara Fleetwood-Beresford

Fighting to be heard in healthcare

4th Dec 202127th Mar 2023 Sahara Fleetwood-Beresford

What is crohn’s and colitis advocacy?

22nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

I can’t hold my pee!

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

28th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD: Not to be confused with IBS!

26th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD diagnostics and examinations can be really disruptive

20th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Disability Employment Awareness Month

14th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Invisible illness. Just because I look OK…

9th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

How my own actions have negatively impacted my health

6th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Comments and accusations during meals out

25th Sep 202127th Mar 2023 Sahara Fleetwood-Beresford

What if I don’t want to rest?!

21st Sep 202127th Mar 2023 Sahara Fleetwood-Beresford

Where’s my psychological support?

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If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists. A memory popped into my head yesterday, that made me feel really icky.
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