Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: #IBDSuperHeroes

3rd Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

FAQ | Dealing with trapped wind

23rd Jun 202027th Mar 2023 Sahara Fleetwood-Beresford

Ostomy leaks and samples!

19th May 202027th Mar 2023 Sahara Fleetwood-Beresford

#IBDSuperHeroes World IBD Day Challenge

21st Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

How COVID-19 has impacted the IBD community

26th Mar 20203rd Feb 2026 Sahara Fleetwood-Beresford

TalkHealth | meets…Sahara Fleetwood-Beresford, IBD blogger & #IBDSuperHeroes founder

11th Mar 20203rd Feb 2026 Sahara Fleetwood-Beresford

PoPSTER | Patient preferences & current Practice for adults with steroid resistant UC

5th Mar 202030th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | resilience in IBD study

4th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

KTMY | The Chronically Living Series: Sahara, Founder of #IBDSuperHeroes

22nd Jan 202028th Mar 2023 Sahara Fleetwood-Beresford

IBDRelief | Sahara Fleetwood-Beresford – My IBD Story

2nd Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Celebrating my achievements since stoma surgery!

7th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

Responding to negativity in the IBD community

28th Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Trio Ostomy Care | Meet Sahara

25th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Should I join an online support group?

5th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Contributing to improving care for IBD patients

18th May 201928th Mar 2023 Sahara Fleetwood-Beresford

IBD awareness hashtags for World IBD Day 2019

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When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration!
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