Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: #IBDSuperHeroes

5th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Scars tell my story; one I don't always want to remember

3rd May 202227th Mar 2023 Sahara Fleetwood-Beresford

Anxiety about using the toilet in other people’s homes

22nd Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

What does remission look like?

19th Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

We're probably not “fine”

11th Mar 202228th Jan 2026 Sahara Fleetwood-Beresford

20 low-residue meal ideas

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

11th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Night-time incontinence

24th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

IBD treatment can be really rough

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

9th Dec 202128th Mar 2023 Sahara Fleetwood-Beresford

Fighting to be heard in healthcare

7th Dec 202117th Oct 2024 Sahara Fleetwood-Beresford

FAQ | Swimming with a stoma

22nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

I can’t hold my pee!

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

26th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD diagnostics and examinations can be really disruptive

6th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Comments and accusations during meals out

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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