Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: #IBDSuperHeroes

16th Mar 2026 Sahara Fleetwood-Beresford

Endometriosis and the gut: The frustration of the diagnostic overlap

26th Feb 20262nd Mar 2026 Sahara Fleetwood-Beresford

IBD and food fear: What the latest research tells us

5th Feb 20264th Feb 2026 Sahara Fleetwood-Beresford

Braving the Big Talk – we don’t always need the “right” words

3rd Feb 20263rd Feb 2026 Sahara Fleetwood-Beresford

A different version of me: Why I stepped back and how I’m moving forward

28th Jan 202628th Jan 2026 Sahara Fleetwood-Beresford

Beyond suppression – copying nature’s IBD protection

17th Aug 202526th Jan 2026 Sahara Fleetwood-Beresford

So, I became a meme: Advocacy and the risk of visibility

25th Feb 202528th Jan 2026 Sahara Fleetwood-Beresford

Some hard data on diet and Crohn’s: The ADDapt Trial

30th Oct 20236th Nov 2024 Sahara Fleetwood-Beresford

How stress affects IBD: The gut-brain connection

14th Apr 2023 Sahara Fleetwood-Beresford

Using support groups correctly

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

19th Dec 202227th Mar 2023 Sahara Fleetwood-Beresford

Explaining IBD to family and friends

30th Sep 202228th Jan 2026 Sahara Fleetwood-Beresford

Common struggles after stoma surgery

16th Aug 202227th Mar 2023 Sahara Fleetwood-Beresford

Advice on new IBD medications

26th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Is this symptom normal?

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Older Posts

If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists. A memory popped into my head yesterday, that made me feel really icky.
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