Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD

22nd Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

What does remission look like?

19th Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

We're probably not “fine”

1st Apr 202223rd Aug 2024 Sahara Fleetwood-Beresford

What tenesmus is and how it’s treated

27th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Travelling with IBD

15th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Pred | Common side effects and why I won’t take it again

11th Mar 202228th Jan 2026 Sahara Fleetwood-Beresford

20 low-residue meal ideas

9th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Scalp psoriasis

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

11th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Night-time incontinence

9th Feb 202227th Mar 2023 Sahara Fleetwood-Beresford

Dating with an ostomy

24th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

IBD treatment can be really rough

19th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

Ostomy life: Progress report

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

9th Dec 202128th Mar 2023 Sahara Fleetwood-Beresford

Fighting to be heard in healthcare

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My #ADHD diagnosis was one week today, and while I’ve spent that time processing, a few things are starting to click into place. It’s a big piece of the puzzle. For a long time, #ChronicPain and #PTSD have been viewed as two VERY separate battles, but some recent research confirms a deep link. My latest blog post, The PTSD and pain link: What the research says, explores how medical trauma from emergency surgeries, hospital stays, or not being believed actually changes our nervous system - link in bio. Since finishing my #reiki training last month, I’ve been following my morning yoga practice with a "strengthening my light" meditation and some mini self-reiki. It’s been a lovely addition to the routine, but it turns out I was much more tired than I realised this morning. 😂 Yikes! 🙈 Spring must be on its way because I was out of the house today, without a hat! ☀️ The increase in people diagnosed with #ADHD in recent years made it impossible not to learn about it, just "in passing". Plus, some people around me have a keen interest in neurodivergence, too. It's not a rabbit hole I went down, but the more second-hand thing's I've learnt, the more I began to wonder whether it could be me. Then I wondered whether everyone thinks that about themselves? If you've ever looked at a restaurant menu and felt like you were staring at a list of potential landmines, you aren't being "difficult". I'm sharing how new research validates the food fear so many of us in the #IBD community live with for #EatingDisordersAwarenessWeek. SOME surgeries can impact fertility, but finding the facts and figures for your specific surgery can be difficult 🤯 It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈
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Sahara Fleetwood-Beresford | Patient Advocacy
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