Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

20th Jan 202328th Jan 2026 Sahara Fleetwood-Beresford

Finding MY healthy lifestyle with IBD and an ostomy

19th Dec 202227th Mar 2023 Sahara Fleetwood-Beresford

Explaining IBD to family and friends

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

16th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Changing seasons, chronic fatigue, and mental health

20th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

My relationship with IBD and sleep

17th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

Physio update: Body and mind, misaligned

15th Oct 202229th Jun 2023 Sahara Fleetwood-Beresford

My bladder issues following colorectal surgery

16th Aug 202227th Mar 2023 Sahara Fleetwood-Beresford

Advice on new IBD medications

30th Jun 202230th Jan 2025 Sahara Fleetwood-Beresford

Sleep hygiene and IBD: Why it matters and how to improve it

26th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Is this symptom normal?

6th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Where did all the IBD & ostomy blogs go?!

5th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Scars tell my story; one I don't always want to remember

3rd May 202227th Mar 2023 Sahara Fleetwood-Beresford

Anxiety about using the toilet in other people’s homes

25th Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

Hair loss in people with IBD

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My #ADHD diagnosis was one week today, and while I’ve spent that time processing, a few things are starting to click into place. It’s a big piece of the puzzle. For a long time, #ChronicPain and #PTSD have been viewed as two VERY separate battles, but some recent research confirms a deep link. My latest blog post, The PTSD and pain link: What the research says, explores how medical trauma from emergency surgeries, hospital stays, or not being believed actually changes our nervous system - link in bio. Since finishing my #reiki training last month, I’ve been following my morning yoga practice with a "strengthening my light" meditation and some mini self-reiki. It’s been a lovely addition to the routine, but it turns out I was much more tired than I realised this morning. 😂 Yikes! 🙈 Spring must be on its way because I was out of the house today, without a hat! ☀️ The increase in people diagnosed with #ADHD in recent years made it impossible not to learn about it, just "in passing". Plus, some people around me have a keen interest in neurodivergence, too. It's not a rabbit hole I went down, but the more second-hand thing's I've learnt, the more I began to wonder whether it could be me. Then I wondered whether everyone thinks that about themselves? If you've ever looked at a restaurant menu and felt like you were staring at a list of potential landmines, you aren't being "difficult". I'm sharing how new research validates the food fear so many of us in the #IBD community live with for #EatingDisordersAwarenessWeek. SOME surgeries can impact fertility, but finding the facts and figures for your specific surgery can be difficult 🤯 It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈
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Sahara Fleetwood-Beresford | Patient Advocacy
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