Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD

2nd Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

Frustrations of an Invisible Illness

25th Nov 201928th Mar 2023 Sahara Fleetwood-Beresford

“At least it’s not cancer”

2nd Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Celebrating my achievements since stoma surgery!

25th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

The extra-intestinal manifestations of ulcerative colitis

7th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

Responding to negativity in the IBD community

28th Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Trio Ostomy Care | Meet Sahara

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

30th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

My stoma favourites – Adhesive remover & barrier wipes

25th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

It’s official – I’m a writer now!

17th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

Are you comfortable educating people about your health?

25th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Should I join an online support group?

5th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Contributing to improving care for IBD patients

18th May 201928th Mar 2023 Sahara Fleetwood-Beresford

IBD awareness hashtags for World IBD Day 2019

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

21st Feb 201927th Mar 2023 Sahara Fleetwood-Beresford

Why “How are you?” is difficult to answer when you’re sick so often

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Just sharing my #IBD / #UlcerativeColitis diagnosis story from waaaay back in 2007! 😳 If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists.
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Sahara Fleetwood-Beresford | Patient Advocacy
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