Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

30th Oct 20236th Nov 2024 Sahara Fleetwood-Beresford

How stress affects IBD: The gut-brain connection

20th Jul 202320th Jul 2023 Sahara Fleetwood-Beresford

Know your rights | GP practices

18th Jul 202318th Jul 2023 Sahara Fleetwood-Beresford

Taking pills doesn’t make me weak

15th Jun 2023 Sahara Fleetwood-Beresford

What’s a RADAR key and where to get one

27th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

Extraintestinal manifestations of IBD

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

20th Jan 202328th Jan 2026 Sahara Fleetwood-Beresford

Finding MY healthy lifestyle with IBD and an ostomy

19th Dec 202227th Mar 2023 Sahara Fleetwood-Beresford

Explaining IBD to family and friends

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

16th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Changing seasons, chronic fatigue, and mental health

20th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

My relationship with IBD and sleep

15th Oct 202229th Jun 2023 Sahara Fleetwood-Beresford

My bladder issues following colorectal surgery

16th Aug 202227th Mar 2023 Sahara Fleetwood-Beresford

Advice on new IBD medications

30th Jun 202230th Jan 2025 Sahara Fleetwood-Beresford

Sleep hygiene and IBD: Why it matters and how to improve it

26th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Is this symptom normal?

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When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration!
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