Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

16th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Changing seasons, chronic fatigue, and mental health

20th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

My relationship with IBD and sleep

15th Oct 202229th Jun 2023 Sahara Fleetwood-Beresford

My bladder issues following colorectal surgery

16th Aug 202227th Mar 2023 Sahara Fleetwood-Beresford

Advice on new IBD medications

30th Jun 202230th Jan 2025 Sahara Fleetwood-Beresford

Sleep hygiene and IBD: Why it matters and how to improve it

26th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Is this symptom normal?

6th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Where did all the IBD & ostomy blogs go?!

5th May 202227th Mar 2023 Sahara Fleetwood-Beresford

Scars tell my story; one I don't always want to remember

3rd May 202227th Mar 2023 Sahara Fleetwood-Beresford

Anxiety about using the toilet in other people’s homes

25th Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

Hair loss in people with IBD

22nd Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

What does remission look like?

19th Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

We're probably not “fine”

1st Apr 202223rd Aug 2024 Sahara Fleetwood-Beresford

What tenesmus is and how it’s treated

27th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Travelling with IBD

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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Sahara Fleetwood-Beresford | Patient Advocacy
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