Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

14th May 201524th Mar 2023 Sahara Fleetwood-Beresford

Has IBD affected your relationship with friends and family?

13th May 20153rd Feb 2026 Sahara Fleetwood-Beresford

Do you suffer from mental health issues such as anxiety or depression due to IBD?

19th Apr 201524th Mar 2023 Sahara Fleetwood-Beresford

Poem | A battle called ibd

2nd Apr 201524th Mar 2023 Sahara Fleetwood-Beresford

Always keep going

18th Mar 201524th Mar 2023 Sahara Fleetwood-Beresford

So I just keep going, the scenery never changing.

18th Mar 201524th Mar 2023 Sahara Fleetwood-Beresford

Just complaining about IBD, my Jpouch, and everything else

4th Feb 201524th Mar 2023 Sahara Fleetwood-Beresford

My IBD diagnosis saved me from myself

2nd Feb 201524th Mar 2023 Sahara Fleetwood-Beresford

IBD | This is your life

22nd Nov 201424th Mar 2023 Sahara Fleetwood-Beresford

Ostomy reversal surgery – in pictures

5th Nov 201424th Mar 2023 Sahara Fleetwood-Beresford

An open letter to my fellow IBD sufferers

2nd Nov 201411th Apr 2023 Sahara Fleetwood-Beresford

How IBD is like an unwanted house guest

22nd Oct 201424th Mar 2023 Sahara Fleetwood-Beresford

A book to remember

9th Sep 201424th Mar 2023 Sahara Fleetwood-Beresford

To reverse or not to reverse…

8th Sep 201424th Mar 2023 Sahara Fleetwood-Beresford

Why I'm grateful for my IBD diagnosis

8th Sep 201424th Mar 2023 Sahara Fleetwood-Beresford

The hospital diary – resection and ileostomy

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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