Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD life

18th Mar 201524th Mar 2023 Sahara Fleetwood-Beresford

Just complaining about IBD, my Jpouch, and everything else

4th Feb 201524th Mar 2023 Sahara Fleetwood-Beresford

My IBD diagnosis saved me from myself

2nd Feb 201524th Mar 2023 Sahara Fleetwood-Beresford

IBD | This is your life

22nd Nov 201424th Mar 2023 Sahara Fleetwood-Beresford

Ostomy reversal surgery – in pictures

5th Nov 201424th Mar 2023 Sahara Fleetwood-Beresford

An open letter to my fellow IBD sufferers

2nd Nov 201411th Apr 2023 Sahara Fleetwood-Beresford

How IBD is like an unwanted house guest

22nd Oct 201424th Mar 2023 Sahara Fleetwood-Beresford

A book to remember

9th Sep 201424th Mar 2023 Sahara Fleetwood-Beresford

To reverse or not to reverse…

8th Sep 201424th Mar 2023 Sahara Fleetwood-Beresford

Why I'm grateful for my IBD diagnosis

8th Sep 201424th Mar 2023 Sahara Fleetwood-Beresford

The hospital diary – resection and ileostomy

27th May 201424th Mar 2023 Sahara Fleetwood-Beresford

Forever in limbo

23rd May 201424th Mar 2023 Sahara Fleetwood-Beresford

IBD survey results!

10th May 201424th Mar 2023 Sahara Fleetwood-Beresford

UC diagnosis, ileostomy, jpouch creation and an ostomy reversal

6th May 201424th Mar 2023 Sahara Fleetwood-Beresford

Dating with IBD or an ostomy

17th Apr 201431st Mar 2023 Sahara Fleetwood-Beresford

The emotional effects of IBD

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When you live with an #ostomy, there's often a kind of vulnerability in the simple act of getting dressed. For a long time, my bedroom mirror was a place of scrutiny rather than reflection. I would look at my #stoma and my scars, and see a list of things I had to hide, or a body that felt like it had betrayed me. Monday was supposed to be a productive day. With the bank holiday, I had it all mapped out: design, record, and edit new yoga practices while the world was quiet. I finally got myself organised, grabbed a blanket, and found the one sun-spot in the garden to start my work. Just sharing my #IBD / #UlcerativeColitis diagnosis story from waaaay back in 2007! 😳 If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳
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