Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: IBD awareness

1st Apr 202223rd Aug 2024 Sahara Fleetwood-Beresford

What tenesmus is and how it’s treated

27th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Travelling with IBD

15th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Pred | Common side effects and why I won’t take it again

9th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Scalp psoriasis

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

11th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Night-time incontinence

24th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

IBD treatment can be really rough

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

9th Dec 202128th Mar 2023 Sahara Fleetwood-Beresford

Fighting to be heard in healthcare

4th Dec 202127th Mar 2023 Sahara Fleetwood-Beresford

What is crohn’s and colitis advocacy?

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

28th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD: Not to be confused with IBS!

26th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD diagnostics and examinations can be really disruptive

14th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Invisible illness. Just because I look OK…

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When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration!
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Sahara Fleetwood-Beresford | Patient Advocacy
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