Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

Menu Skip to content
  • About me
  • IBD
  • Ostomy
  • Mental health
  • Chronic pain
  • Fertility Testing
  • FAQ
  • Research opportunities
  • Work with me
  • Contact me
  • 🔍 Search
  • Facebook
  • X
  • Instagram
  • LinkedIn
  • Bluesky
  • Threads
  • TikTok
  • YouTube

Tag: IBD awareness

27th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Travelling with IBD

15th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Pred | Common side effects and why I won’t take it again

9th Mar 202227th Mar 2023 Sahara Fleetwood-Beresford

Scalp psoriasis

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

11th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Night-time incontinence

24th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

IBD treatment can be really rough

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

9th Dec 202128th Mar 2023 Sahara Fleetwood-Beresford

Fighting to be heard in healthcare

4th Dec 202127th Mar 2023 Sahara Fleetwood-Beresford

What is crohn’s and colitis advocacy?

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

28th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD: Not to be confused with IBS!

26th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD diagnostics and examinations can be really disruptive

14th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Invisible illness. Just because I look OK…

6th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Comments and accusations during meals out

Posts navigation

Older Posts
Newer posts

Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
One-Time
Monthly
Yearly

Buy me a coffee ☕️

Make a monthly donation

Make a yearly donation

Choose an amount

£5.00
£10.00
£15.00
£5.00
£15.00
£100.00
£5.00
£15.00
£100.00

Or enter a custom amount

£

Your contribution is appreciated.

Your contribution is appreciated.

Your contribution is appreciated.

DonateDonate monthlyDonate yearly
Blog at WordPress.com.
Sahara Fleetwood-Beresford | Patient Advocacy
Blog at WordPress.com.
Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy
  • Subscribe Subscribed
    • Sahara Fleetwood-Beresford | Patient Advocacy
      • Join 52 other subscribers.
    • Already have a WordPress.com account? Log in now.
    • Sahara Fleetwood-Beresford | Patient Advocacy
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar
 

Loading Comments...