Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Healthcare

3rd Feb 20263rd Feb 2026 Sahara Fleetwood-Beresford

A different version of me: Why I stepped back and how I’m moving forward

29th Jan 202530th Jan 2025 Sahara Fleetwood-Beresford

Holistic, complementary, and alternative medicine – what’s the difference?

20th Jul 202320th Jul 2023 Sahara Fleetwood-Beresford

Know your rights | GP practices

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

26th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

IBD diagnostics and examinations can be really disruptive

31st Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

Waiting: A Symptom of IBD?

14th Apr 202027th Mar 2023 Sahara Fleetwood-Beresford

When GPs get it wrong

29th Jan 202027th Mar 2023 Sahara Fleetwood-Beresford

Is it all in my head?

30th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

My stoma favourites – Adhesive remover & barrier wipes

5th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Contributing to improving care for IBD patients

14th Sep 201828th Mar 2023 Sahara Fleetwood-Beresford

The emotional impact of surgery

14th May 20183rd Feb 2026 Sahara Fleetwood-Beresford

Can you have Crohn's Disease AND Ulcerative Colitis in one patient? The facts

13th May 20183rd Feb 2026 Sahara Fleetwood-Beresford

Self-care series | Learn about your disease and where to look for information

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Older Posts

Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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