Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s

30th Oct 20236th Nov 2024 Sahara Fleetwood-Beresford

How stress affects IBD: The gut-brain connection

20th Oct 2023 Sahara Fleetwood-Beresford

Research opportunity | Budesonide in IBD online workshop

15th Jun 2023 Sahara Fleetwood-Beresford

What’s a RADAR key and where to get one

14th Jun 2023 Sahara Fleetwood-Beresford

Research opportunity | Mind-Body IBD Study

1st Jun 2023 Sahara Fleetwood-Beresford

The tightrope of hope

14th Apr 2023 Sahara Fleetwood-Beresford

Using support groups correctly

27th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

Extraintestinal manifestations of IBD

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

19th Dec 202227th Mar 2023 Sahara Fleetwood-Beresford

Explaining IBD to family and friends

29th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Grieving for my pre-IBD life

16th Nov 202227th Mar 2023 Sahara Fleetwood-Beresford

Changing seasons, chronic fatigue, and mental health

20th Oct 202227th Mar 2023 Sahara Fleetwood-Beresford

My relationship with IBD and sleep

16th Aug 202227th Mar 2023 Sahara Fleetwood-Beresford

Advice on new IBD medications

30th Jun 202230th Jan 2025 Sahara Fleetwood-Beresford

Sleep hygiene and IBD: Why it matters and how to improve it

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My #ADHD diagnosis was one week today, and while I’ve spent that time processing, a few things are starting to click into place. It’s a big piece of the puzzle. For a long time, #ChronicPain and #PTSD have been viewed as two VERY separate battles, but some recent research confirms a deep link. My latest blog post, The PTSD and pain link: What the research says, explores how medical trauma from emergency surgeries, hospital stays, or not being believed actually changes our nervous system - link in bio. Since finishing my #reiki training last month, I’ve been following my morning yoga practice with a "strengthening my light" meditation and some mini self-reiki. It’s been a lovely addition to the routine, but it turns out I was much more tired than I realised this morning. 😂 Yikes! 🙈 Spring must be on its way because I was out of the house today, without a hat! ☀️ The increase in people diagnosed with #ADHD in recent years made it impossible not to learn about it, just "in passing". Plus, some people around me have a keen interest in neurodivergence, too. It's not a rabbit hole I went down, but the more second-hand thing's I've learnt, the more I began to wonder whether it could be me. Then I wondered whether everyone thinks that about themselves? If you've ever looked at a restaurant menu and felt like you were staring at a list of potential landmines, you aren't being "difficult". I'm sharing how new research validates the food fear so many of us in the #IBD community live with for #EatingDisordersAwarenessWeek. SOME surgeries can impact fertility, but finding the facts and figures for your specific surgery can be difficult 🤯 It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈
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Sahara Fleetwood-Beresford | Patient Advocacy
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