Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Crohn’s

25th Nov 201928th Mar 2023 Sahara Fleetwood-Beresford

“At least it’s not cancer”

20th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Balancing work, IBD and an ostomy

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

25th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

The extra-intestinal manifestations of ulcerative colitis

7th Sep 201927th Mar 2023 Sahara Fleetwood-Beresford

Responding to negativity in the IBD community

28th Aug 201928th Mar 2023 Sahara Fleetwood-Beresford

Trio Ostomy Care | Meet Sahara

19th Aug 201927th Mar 2023 Sahara Fleetwood-Beresford

I’d prefer reality to “sugar coating” shit

25th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

It’s official – I’m a writer now!

17th Jul 201927th Mar 2023 Sahara Fleetwood-Beresford

Are you comfortable educating people about your health?

25th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Should I join an online support group?

5th Jun 201927th Mar 2023 Sahara Fleetwood-Beresford

Contributing to improving care for IBD patients

18th May 201928th Mar 2023 Sahara Fleetwood-Beresford

IBD awareness hashtags for World IBD Day 2019

27th Feb 201914th Apr 2023 Sahara Fleetwood-Beresford

Are IBD and ostomy influencers reliable?

21st Feb 201927th Mar 2023 Sahara Fleetwood-Beresford

Why “How are you?” is difficult to answer when you’re sick so often

26th Jan 20193rd Feb 2026 Sahara Fleetwood-Beresford

Metro | Five women open up about how having a stoma bag has affected their love lives

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A quick heads-up to anyone who ever buys or plans on buying us presents… 🎁🫣 I’ve spent the last few weeks completely overhauling my home to clear out microplastics. I wrote about how reducing microplastics can benefit people with #IBD and other #ChronicIllness 🔗 https://advocatinghealth.com/2026/09/08/reducing-microplastics-to-benefit-ibd/ First, apologies for the recent irresponsible post! Intestinal blockage aftermath... I’ve switched to an anti-inflammatory Mediterranean diet recently, but adapting it to suit my specific restrictions (intestinal strictures from surgeries) has been a lot to get my head around! 😵‍💫 Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨
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