Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Chronic Illness

2nd Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

Frustrations of an Invisible Illness

20th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Balancing work, IBD and an ostomy

11th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Too sick to be social

21st Feb 201927th Mar 2023 Sahara Fleetwood-Beresford

Why “How are you?” is difficult to answer when you’re sick so often

24th Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Things people don't usually talk about – highs and lows of upcoming surgery

3rd Apr 201824th Mar 2023 Sahara Fleetwood-Beresford

Keep building the warriors we look up to…

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Newer posts

My #ADHD diagnosis was one week today, and while I’ve spent that time processing, a few things are starting to click into place. It’s a big piece of the puzzle. For a long time, #ChronicPain and #PTSD have been viewed as two VERY separate battles, but some recent research confirms a deep link. My latest blog post, The PTSD and pain link: What the research says, explores how medical trauma from emergency surgeries, hospital stays, or not being believed actually changes our nervous system - link in bio. Since finishing my #reiki training last month, I’ve been following my morning yoga practice with a "strengthening my light" meditation and some mini self-reiki. It’s been a lovely addition to the routine, but it turns out I was much more tired than I realised this morning. 😂 Yikes! 🙈 Spring must be on its way because I was out of the house today, without a hat! ☀️ The increase in people diagnosed with #ADHD in recent years made it impossible not to learn about it, just "in passing". Plus, some people around me have a keen interest in neurodivergence, too. It's not a rabbit hole I went down, but the more second-hand thing's I've learnt, the more I began to wonder whether it could be me. Then I wondered whether everyone thinks that about themselves? If you've ever looked at a restaurant menu and felt like you were staring at a list of potential landmines, you aren't being "difficult". I'm sharing how new research validates the food fear so many of us in the #IBD community live with for #EatingDisordersAwarenessWeek. SOME surgeries can impact fertility, but finding the facts and figures for your specific surgery can be difficult 🤯 It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈
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