Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Chronic Illness

14th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Invisible illness. Just because I look OK…

25th Sep 202127th Mar 2023 Sahara Fleetwood-Beresford

What if I don’t want to rest?!

21st Aug 202127th Mar 2023 Sahara Fleetwood-Beresford

How I was yesterday means nothing today!

22nd Jul 202127th Mar 2023 Sahara Fleetwood-Beresford

Trying to find balance with IBD pain

26th Mar 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my physical activity

8th Jan 202127th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my recreational activities

25th Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my career

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

7th Sep 202027th Mar 2023 Sahara Fleetwood-Beresford

A new diagnosis – fibromyalgia

30th Jul 20207th Sep 2023 Sahara Fleetwood-Beresford

Sustaining friendships has been more difficult due to chronic illness

29th May 202028th Mar 2023 Sahara Fleetwood-Beresford

Am I causing my own symptoms?

22nd Apr 202028th Mar 2023 Sahara Fleetwood-Beresford

Stress? Anxiety? Panic? Whatever it's called, I don't like it!

18th Dec 20191st Nov 2023 Sahara Fleetwood-Beresford

Feeling lonely is more normal than you think

2nd Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

Frustrations of an Invisible Illness

20th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Balancing work, IBD and an ostomy

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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