Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Brave the Big Talk

5th Feb 20264th Feb 2026 Sahara Fleetwood-Beresford

Braving the Big Talk – we don’t always need the “right” words

When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users! Have you ever wondered why some people never develop #IBD even when it’s in their family? 🧬✨ 📣 I need help from users of #MenstrualCups 🙏🏻 My cousin suggested a taxi to an area in #Reykjavik with waterfalls and woods for the 14th. Surprisingly, everyone was up for it, despite the fact we were all completely exhausted 😂 I think it being our last day played part in us managing to rally! Me in Iceland: I got a text earlier saying: On Jan 13th, we had a slow start to the day and then went on a whale watching boat trip. It was invigoratingly cold for an hour, but then it was just bloody freezing 🥶 I glimpsed a whale numerous times, though 🥰 Jan 12th... The #NorthernLights graced us with their presence, AGAIN 🥰 In total awe 😍
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